Nearing the Finish Line

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Hello Friends,

I just had to post again as I vacillate between giddy delight and emotional overwhelm. It feels like we’re all just holding our breath … unbelieving that it’s really almost here: MARCH 6TH, and MARCH 11th: Lulu’s last day of chemo and last surgery.

It’s been a special week. I was honored to have my children’s book The What If Book featured with our story for a fundraiser for Ridin’ For Research. It was SO powerful. The pages of the book served as a backdrop while video of our story was woven between moving narration. I was really choking back the ugly cry as pictures of Lulu came onto the two ginormous screens; reliving the story in bold face as it played out. We went on stage and passed out rainbow bracelets to everyone there which read: “Never stop wondering WHAT IF?” I can’t thank presenter Kim enough for her hard work on this event, her attention to detail and the research and respect she paid to our story, as well as Bo Johnson’s. Carol, the illustrator, and I did a book signing afterword and Lulu also signed each and every book, adding in a special bit of art with her signature. It was adorable and she stole the show as usual :-). I’m very proud to have been a part of it, and the event raised over $70,000 for cancer research!!!

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Max kicked some major bootay at Forensics this week, finishing his first season with 5 blue ribbons in solo comedy, culminating in the Power Rounds where he went up against 7th and 8th graders to walk away with the overall first place trophy! I continue to be amazed with how well he’s done despite his sister’s illness. He’s quietly and deeply affected by it, while managing to be there to make her laugh when she needs it, and still an imperfect enough big brother to remind us all to appreciate some normalcy.

Lulu is literally checking off the days on her calendar, also giddy and sensitive. She’s vomited the last 2 days in a row from her chemo, and feels ‘floppy’ but also extremely excited to give the nasty chemo dragon a permanent goodbye. It’s a lot to digest for all of us. We’ve been running into the wind for 2.5 years, heads down, completely focused. The thought of that force of air being cut off and calm seems almost unfathomable. I expect a tidal wave of emotion may come from behind us to fill that stillness …

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with love,

a.l.l. of us

Update and Lemon-Aid tomorrow

Hello,

Just a quick update today.  We will be doing another lemon-aid stand at our church, all proceeds go to childhood cancer research: Sunday (tomorrow) July 15 from 11-1.
To donate to Love for Lulu:
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=HWVDDTBWNFYDE

Otherwise, not too much to report.  We’ve had a week off of treatment since Lu’s counts didn’t make it to start Maintenance Treatment.  We can tell some drugs are leaving her system and she’s showing wonderful signs of her true self.  She’s still having some tantrums, but after speaking with some of you who have 5-year-old girls, it doesn’t sound as out of the ordinary.  – or you’re just trying to make me feel better (you are).  My favorite line from Lulu this week came after I asked her to just TRY not to overreact to every little thing.  She responded very dramatically, hands waving in the air: “But Mama, I CAAAN’T!!!  It’s just how I WORK!!!”

Keeping it real as always, Jimmy and I had a date last week where we ended up ‘discussing’ (as my parents always called it) during the whole thing!  We discussed at the first restaurant starting with politics, on through dessert at the next stop. We went into everything we haven’t been able to cover in the last 8 months… just another way cancer affects a family; little time to communicate.  I guess we got it all out in one night, and we were able to tease each other about it the next day.  Now we can’t wait for the next date :-).

Jimmy’s mom is visiting after having what we hope is successful back surgery, so we have a full house here.  We are looking forward to setting up playdates for Lulu.  Her counts should be good enough from here on out to enter a normal-ish zone where she can play with healthy kids! Travels are ahead for hubby, and work is heating up for me so playdates are extra helpful, and heck knows Lulu needs to play with someone other than us!

I’ll write more soon, lots to do this weekend.  Hope to see you drinking lemonade tomorrow!

Love to you ALL

Radio interview with Lulu

Many of you have asked to hear the recording Lulu and my husband did for Children’s Hospital, so here it is in all it’s beauty.  I’m SO proud of them both.  Lulu’s voice dapples sunlight throughout, and shines ever-so-brightly in the end. 
Thank you for taking the time to listen, and to our dear friend Tabb for getting this recording to us.