Lulu and “The Biebs”

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Hello Friends,

Yes, it really is Justin Bieber, “The Biebs” in the pic with us.   There’s quite a story behind this pic that I thought I’d share with you:  We have a friend, Neil, who is very well connected.  He also happens to be one of the nicest people I’ve ever known, a true humanitarian.  He emailed a couple of weeks ago, letting us know he had tickets for a few of the kids from Children’s Hospital.    He told us up front that it would be VERY unlikely to meet Justin in person, and that in all his years of doing events like this, only ONE celebrity had ever taken the time to meet the kids with cancer (Pretty sad, huh?).  We were fine with it, and just happy to be able to go to the concert.

Then, we got the call:  “Come to the SE corner of 4th and State and we may get you in to meet Justin”.  It felt very COVERT OPS and we were all in.  We rushed to get dressed and I threw Lulu into the first pink something I could find.  Jimmy dropped us off, and we were instructed not to bring anyone else in, just one parent and no cameras of any kind.  We met the group at the door and were escorted into the building.  We felt so V.I.P., -at least for a while … we ended up in the hurry-up-and-wait mode for over an hour.  Lulu had been Sybil-on-steroids all day, and here we were, in a heightened situation, with no food and low blood sugar and little miss crabby-pants.  Lulu was crabby too :-0.  I hinted not very subtly to the other moms to see if they had any food.  Nope.  Someone offered a Swedish Fish, and I took it for Lulu out of desperation.  She didn’t like it.  More waiting.  Security guards from the Bieber Tour came out all uber-cool, overly tattooed, but accomodating.  They were a stark contrast to the clean-cut suited staff from the MACC Fund and Bradley Center.  Suddenly, an extremely intense man in a t-shirt came out and started speaking to Neil.  Well, not so much speaking as condescending and power tripping all over him.  He was within earshot of our group, right out in the open.   I heard bits and pieces of “I don’t care who you are, you’re no one.  I’M the only you have to listen to …”.   “Who are you? Who are you?  Do you have a kid with cancer?  No, then you need to leave now” … “we need to get these moms out of here, it’s only the kids if we even let them in” … “they have to go outside and come back in … I don’t care if they’re immune systems are compromised, they need to wait outside” … It went on, and I shuffled away out of sheer embarrassment for both my friend and the a-hole who was reading him the riot act.  Let me mention again, that Neil not only organizes events like this, but he started a very successful camp for children with AIDS, and has been named man of the year by GQ magazine.  I was steaming for him, and, although he completely kept his composure, said he’s never been treated like that in all his years.  It turns out the man didn’t work for either Beiber or The Bradley Center, and we still aren’t sure who he was with.

We finally got clearance for the first half of the group to go in.  NO parents, just kids.  Did I mention Lulu was clingy, breaking down, on day 5 of steroids and closing in on full-on OCD?  I thought, this is NEVUH going to happen.  But my little spitfire looked at me with fierce and focused determination and said “ OK Mama, I’ll do it.”  I think she has more gumption in her little finger than most people have in their entire bodies!   She followed the older girls in, and one mom who had to push her son in his wheelchair.  We waited and waited, then waited some more.  The second group was called and could come in with ONE parent.  Really?!?  NOW they can have a parent?  We tried to convince security to let those of us with very young children in, but it was a no.  After about 45 minutes, Neil and I went back to the main entrance to see if the kids were anywhere near coming out.  One of the guards from The Bradley Center recognized Neil and, with obvious respect, asked why he wasn’t inside, he was V.I.P.!  The guards graciously escorted us back in, and Neil, always concerned for everyone else, made sure I got to Lulu.  She had apparently had a couple minor breakdowns and had to go to the bathroom.  I think I got there just in time.

Another 20 minutes passed and Lulu was given a pink wristband that read “Meet and Greet Justin Bieber’.  There were girls breaking down like they were at a Beatles concert.  There was periodic ear-piercing screaming, and I kept glancing at the floor, waiting for someone to faint.  We were whisked into a waiting area outside a small, 20×20 foot black curtained-off square.   Suddenly, we were inside, and there he was, so petite and pale, with a warm twinkle in his eye and a friendly hello.  His handlers quickly set us up for a picture.  SNAP. And we were done.  Out of the tent, wristband cut off, and out to the waiting area.

The kids from Children’s were starting to fade, as we waited another hour to get into our suite.  Yep, they had a SUITE for us!  The Bradley Center security team was extremely generous, and allowed us to go up before the main seating opened.  We were met with staff and a full assortment of savory and sweet treats.  There were 3 extra private rooms within the suite for those who wished to sit there.  Carly Rae Jepsen opened with a few songs before Justin came out.  Lulu was still in rare form, and continued to OCD her way through the night.  I think she had about 20 mini-tantrums during the course of the concert, and I struggled to keep calm as she kept demanding I sit a certain way, hold my arms around her just so, sit statue still during the beginning and endings of the songs (or the song would be ruined), and not talk to anyone.  I was fighting my own inner battle, as I have a lot during the course of this new behavior.  Do I give in to help her feel the control she so desperately needs, or do I just not take this ludicrous behavior and demand she behaves?  The other kids were all enjoying the concert, not having tantrums and I felt like that mom with that kid.  I ended up doing a combination of both giving in and disciplining.  I knew she really couldn’t control her behavior between the roids and the anxiety.  At one point I dragged her kicking and screaming into the bathroom until she could calm down enough to go back out.  I knew she was enjoying being there, despite her demeanor, and didn’t want to ruin a good memory for her.  But it took every ounce of my patience to sit through that concert, unmoving on a barstool, palms sweaty against her tummy, back aching and legs stiff, acting like I was having a great time.  Carly and Justin did a great job of entertaining the crowd, proven by the fact that I may be permanently deaf in one ear from the screaming.

It turns out Lulu does have a great memory of the day, and I hope I did the right thing, but who knows?  This is new territory for us, and we don’t have an instruction manual.  We feel strongly that this behavior is mostly drug-induced, and hope it isn’t permanent.  No matter where it’s coming from, we are addressing it but are taking her to therapy once a week, to help her through it.

We would come to find out later that a meet and greet with a picture of Justin can cost upwards of $4000!  Through the amazing Neil, the generous MACC Fund and the gracious Bradley Center, we brought in 11 kids with cancer, and he took a picture with each of us.  Justin Bieber, I may not be in your target market, but I am a fan for life.

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16 Comments

  1. Michelle

     /  October 29, 2012

    Wow, I am happy you all made it through that hectic evening. Lulu looks healthy and beautiful! Too much hype for celebrities these days…they are just people who struck the luck. Hugs and love to you all

    Reply
  2. Stephanie Raffelock

     /  October 29, 2012

    I am glad that you and Lulu got to do something special. You both look gorgeous in the picture. Neil sounds like a great guy and I admire the work that he does. Steroids are a bear. I had steroids for two weeks once for a bad back and it honestly was like drinking 4 pots of coffee in one sitting. Must be tough on a little kid. All in all, it sounds like she did pretty great. I am happy to see the picture of you two. . .oh yeah and the Beiber guy too. biggest of hugs!

    Reply
    • Thanks Stephanie, it was special, especially looking back on it now 🙂 Big hugs right back at cha, love all the writing you’re doing!

      Reply
  3. I love this! There’s millions of teenage girls that are probably jealous of Lulu!

    I’m always that mom with that kid, too. I feel your pain.

    Reply
    • Thanks Kristen, it always helps to know you’re not the only one who’s THAT mom! Hugs to you and yours.

      Reply
  4. complicatedfabulous

     /  October 29, 2012

    Cute picture! Steroids make me a crazy person, I can only imagine what they do to such a little body. We have a 5 year old girl with Type 1 Diabetes, and when her sugars are low or high she has mood swings and behavior that outsiders looking in would probably classify as appalling. But her little body is at the breaking point so we cut her some slack. I am “that” mom a lot. 🙂

    Reply
    • Thanks! I know you really can empathize, having a 5-year old with Diabetes. Not easy, and blood sugar surely affects her as much as any drug!!! Thanks for being “that” mom with me 🙂

      Reply
  5. Courtney

     /  October 29, 2012

    That is just amazing that she got to meet justin bieber.

    Reply
  6. Linda

     /  October 30, 2012

    You deserve several awards just for attending a Bieber concert. Throw in all that other stuff from the evening and you just earned super human status! After reading the entry I have never been more happy to be the mother of boys!

    You and Lulu look great. I love your hair T.

    Reply
    • Linda, I’ve been thinking about you a lot lately, it’s been so long! I’m glad not to be at the hospital as often, but we really miss you. i hope you’re there next time we are. Love you, T

      Reply
  7. Cute picture. I think you did the right thing getting a picture with Justin Bieber. I’m sure Lulu loved it. I am only sorry you had to deal with so much stuff.

    Reply
    • Thanks so much, I guess it was the right thing in the end … I appreciate you following and keep up the great advice on your blog. I’ll have to start taking notes 🙂

      Reply
  8. Kimberly Paulson

     /  November 13, 2012

    What a wonderful post! Thank you! My daughters were at the JB concert with you. This is exactly as they described it. Especially the guard you described!!( the one who would not let my Annabelle see JB and almost ruined her night). Neil is truly as wonderful as you say. He took such good care of my girls. My Emma (17 with ALL) really enjoyed Lulu and sees her as such an inspiration as she is going to be entering maintenance herself next month. Anyway, thanks for posting this. Thanks to Bo’s mom, Annika for sharing it on FB so I could find it. Now my girls have a written memory of the evening. What a thrill! So glad to see how well Lulu is doing. 🙂
    Kim

    Reply
  9. I am so glad at the end of it all…a good memory came out of it. Steroids make a person crazy. My son has an autoimmune disorder that causes neutropenia and thrombocytopenia. When we started treatment, he was on high dose steroids for about 3 months straight with a slow taper for a few months after. I will never forget how incredibly emotional he was during that time–he would cry everytime I left the house. Good news is that after he got off of the steroids, he was back to his normal self.

    Reply

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