Lulu’s journey through pictures

Today marks one year since Lulu’s diagnosis.  I found it too difficult to put the year into words, so I’m  wrapping it up in pictures, and Lulu’s art.

Thank you to the staff at Children’s Hospital, who saved our daughter’s life on multiple occasions over the past year, and continue to treat her, and us with love, respect and compassion.  Thank you to our community, whom we believe wholeheartedly gave us the strength to get through this year.  Thank you to those who employed us, and for the new opportunities that await us.  Thank you to all those we have left unthanked, but made a difference in our lives.  Thank you to my amazing husband and incredible son who are the strongest men I’ve ever known.  Thank you to Lulu, who’s had to deal with life beyond imagination, and has used her own, to cope with a world that defies explanation.  I love you. I love you. I love you.
One more year, five months and counting. Here’s to a.l.l. of us!
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58 Comments

  1. Michelle

     /  November 7, 2012

    How strong your family has stood this past year is inspiring for all. May Lucia’s health continue to improve every day. It’s the small and simple things in life that are remembered and most important…may your family be enriched with peace and the love of each other.
    Always thinking of you, M & M family

    Reply
    • Thanks Michelle, I know you have been going through quite a journey of your own. You are an amazing mother and strong woman. Friends like you help the rest of us get through the worst of it! Love you always, T

      Reply
  2. Jennifer Fischer

     /  November 7, 2012

    What a journey! No words needed. The joy, the pain and the love the images show speak volumes. XO

    Reply
  3. Darrell Boeck

     /  November 7, 2012

    Please hug her for me and make sure she knows how important she is to this planet. She may be little, but she is a very big deal.

    Tears,

    Darrell

    Reply
    • Darrell, you are so right! She’s a force to be reckoned with. Love what you wrote so much, thank you!
      T

      Reply
  4. Beautiful post T – you are a wonderful mentor for a Mamma. Thinking of you all and the year you have been through. Knew the one year was upon us and cannot wait for Lucia to have a BETTER BIRTHDAY than last year. Bigs hugs to each one of you. Think of you guys every day and hope to see you all soon. Go Lucia Mia, go! Olives, C

    Reply
    • Thanks C, I know it’s nearer and dearer to you with a little one of your own on the way. This will be a better birthday, and Holiday season, I’m sure!
      Love you

      Reply
  5. Jackie Worth

     /  November 7, 2012

    My love goes out to you all and I hope this next year brings more rainbows filled with happiness. She is SO inspiring, those pictures touched my heart. xoxo j.

    Reply
  6. Mark Pioli

     /  November 7, 2012

    Samarcos:

    You are such a wonderful family. It was joyful to look through these pictures.

    Love to you all,

    Mark

    Reply
    • Thank you so much Mark, your family was SO supportive during the worst of it. We can’t thank you enough.

      Reply
  7. alison fletcher

     /  November 7, 2012

    I LOVE YOU LULU!! GREAT JOB!!
    Alison Fletcher-Bo & Annika’s friend from Sister Bay!!

    Reply
  8. The pictures say it all so beautifully. You have an amazing family and it is an honor to bear witness to this path that you travel. Thank you for finding the energy and the time to post and inspire us. So much love and goodwill to all of you!

    Reply
    • Thank you my lovely cyber pal! I hope we can meet someday, I’ve fallen completely in love with your writing!

      Reply
  9. Tom

     /  November 7, 2012

    So precious my little earth angel……you come visit us soon:9)

    Reply
  10. JoAnna

     /  November 7, 2012

    This is amazing–I cried what a beautiful little girl and sending you guys lots of love and continued strength :-).

    Reply
  11. Danika Brysha

     /  November 7, 2012

    T, Thank you so much for sharing these beautiful photos. It was probably just a little over a year ago when I first met you at Bon Ton and had the pleasure of working with you, and now I am back here today in Milwaukee and thinking of all that you and your family has been through since you showed me photos of your beautiful family last October. You are all so strong and Lulu is a beam of light and strength. I will continue to send positive thoughts and prayers your way and I look forward to watching as Lulu gets stronger and stronger. Thanks for sharing a peace of your world with all of us.
    xoxo Danika

    Reply
    • You’re so sweet Danika, you left a wonderful lasting impression on me, and I’ve been following your blog too. I love what you’re doing!

      Reply
  12. T, Thank you so much for sharing these beautiful photos. It was probably just a little over a year ago when I first met you at Bon Ton and had the pleasure of working with you, and now I am back here today in Milwaukee and thinking of all that you and your family has been through since you showed me photos of your beautiful family last October. You are all so strong and Lulu is a beam of light and strength. I will continue to send positive thoughts and prayers your way and I look forward to watching as Lulu gets stronger and stronger. Thanks for sharing a peace of your world with all of us.
    xoxo Danika

    Reply
  13. jan grimes

     /  November 7, 2012

    All I can say is WOW! 

    ________________________________

    Reply
  14. Kari

     /  November 7, 2012

    You are all amazing. Your daughter is beautiful and you all will come through this with the love your family shares. Hugs to all of you 🙂

    Reply
  15. Laura Heintzelman

     /  November 7, 2012

    Wow. What a year. What a family. Here’s to
    More rainbows ahead. Love u guys
    Lola

    Reply
  16. Sue Proebsting

     /  November 7, 2012

    How amazing Teresa! I feel blessed that you have shared such a personal and trying journey. The pictures are overwhelming and while they show so much pain at times, I largely feel joy, hope and healing through them. You have such a beautiful family and I hope one day to meet them. I was looking through your pics with my 13 year old daughter and she fell madly in love with Lulu! She asked me to email them to her. We had some minor health issues, in comparison, with both our kids this past year. Your updates were a beautiful reminder that we will get through things and the situation could be harder. Thank you for sharing.

    Reply
    • I had no idea Sue, I hope all is ok? You know I’m just a phone call away if you need to talk/vent/scream, whatever!
      Thank you for following, and for your lovely words.

      Reply
  17. Cindy Stutzel

     /  November 7, 2012

    You forgot to mention how strong you have been. The beauty maker you are has transformed what may be at times a most horrible nightmare that anyone wouldn’t want to face, to a beautiful story of a little princess, of whom no one shall forget her beautiful face and her courageous journey. And what beautiful art! Looking forward to the happy ending.

    Reply
  18. Love this post. Lulu is beautiful.

    Reply
    • Thanks Kristen, it feels so cathartic to have it in place, and to be able to refer to it when I need grounding myself. We feel very hopeful right now, I hope you are too!

      Reply
  19. Linda

     /  November 7, 2012

    “And regardless of what else you put on, wear love. It’s your basic, all-purpose garment. Never be without it.” (The Message-Colossians 3) Your family’s love is so evident in all these pictures. Thanks for sharing the last year’s journey in these beautiful pictures and also in all your wonderful posts. You have a gift T.

    Reply
    • Linda, I LOOOOVE this quote. How perfect, for everything life brings. I will hold it close to my heart, as we do you.

      Reply
  20. The Sammarcos are one of the most strong, loving, talented and awesome families I know. I have been praying for Lulu since this journey started and will continue. Thanks for sharing the pictures T, your daughter is my hero.

    Reply
  21. Janet Tallberg

     /  November 7, 2012

    Incredibly awesome. Glad you got the Beiber pic in there 🙂 I have already signed up, along with many others, for Leukemia & Lymphoma fundraising bike rides for next summer, where our goal is millions to fund research and treatment of blood diseases. We hope they will help cure patients like Lulu.

    Happy 6th birthday to Lulu, a lovely, loved lady.

    Reply
    • You continue to amaze us Janet, your continued ACTIONS are really making a difference in people’s lives. HUGE THANKS!!!

      Reply
  22. Mia

     /  November 8, 2012

    These pictures are incredible. The journey that your family went through the past year is beyond my imagination. I see smiles, love and an amazing family, You guys are an inspiration to so many. Thank you for sharing and continuing to do so. I love all of you!
    Mia

    Reply
  23. Oh T. What a ride you all have had. The pictures are amazing, I especially love the ones with Mason and Lucia together. So sweet. I know I haven’t seen you in awhile, but know that you and your family are always on my mind, and I am sending you big hugs. xo, Kim

    Reply
    • You are on our minds too, and glad your little scare turned into nothing. Thank you God! We will have to catch up very soon! love you

      Reply
  24. carol curley

     /  November 8, 2012

    You all deserve the very best that life has to offer and it will come to you. Love, carol

    Reply
    • So do you Carol. We love seeing you following your passion and talent. That is a gift that keeps on giving!

      Reply
  25. annika johnson

     /  November 8, 2012

    UNBELIEVABLE!!!!!!!!!! I AM IN TEARS OF JOY!!!! I LOVE YOU GUYS! ANNIKA

    Reply
    • Annika, so hard to go through all those pics, but nothing compared to what you are dealing with. Thank you for continuing to inspire all of us!!!!!!!!!

      Reply
  26. Michele Batz

     /  November 8, 2012

    Thanks for sharing this…I remember seeing her around the unit, when Cory was there!

    Reply
  27. Julie Campbell

     /  November 8, 2012

    I have never had the pleasure of meeting Lulu or her wonderful family, but this was one of the most beautiful things I’ve seen in a very long time! Lulu, you are a radiant little beam of sunshine and are obviously LOVED tremendously by soooo many people. I will be praying for you all! God bless you and keep you!

    Reply
    • Hi Julie, thank you for taking the time to read this. My hope has been to share and touch people we’ve never met, so thank you for sharing your thoughts here!!!

      Reply
  28. Lori Johnson

     /  November 8, 2012

    So BEAUTIFUL! Such an inspiration you are Lulu!

    Reply
  29. Caroline

     /  November 8, 2012

    Thank you for sharing your beautiful story 🙂 The photos are priceless! I pray for you all love, health & happiness always! Xx

    Reply
  30. Sally, Tom, Scott, Susan Rondeau

     /  November 9, 2012

    Every single picture exudes so, so much love…..what a journey, one that none of us ever believe we will make,but life doles out many twists and turns. My heart is full. We love you, with many years of memories. We pray that Lulu continues to do well with the remaining protocol and that her life is filled with family and so, so many activities. 4 Rondeau’s

    Reply
    • Thank you Rondeaus. We do have so many years of memories, they are so sacred to me. I continue to keep Carrie’s spirit with me, as I know you do. Who would have guessed our daughters would end up with the same disease? It’s unfathomable. As you put so rightly; life is full of twists and turns. Thank you for continuing to be present in ours. We love you all.

      Reply

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